Wednesday, July 27, 2011
Tuesday, July 26, 2011
I also scheduled my HSG today; that'll be August 5. DH can't be there for it because of stuff that he has for work. I told him it should be ok since even though the paperwork says it's better if someone's there, it's so they can drive you home if you ache too much. I'm going to be going straight to work after the HSG, so that point is kinda moot. DH said very emphatically, though, to call him if I was too achy to go to work and needed him to take me home. He's so sweet. :-)
Saturday, July 23, 2011
The bigger (ok, to me) item related to raising awareness, though, was an email I got from RESOLVE yesterday and was finally able to read in depth today:
Bloggers are so important to the infertility community. You share your stories and insights into a very personal journey. We have another way for you to raise awareness. RESOLVE has partnered with a major women’s magazine to develop an exciting project to raise public awareness about infertility. We need your help to make this a success.
Then it’s up to you. What message do you want to share? Tell us what you wish you’d known about fertility drugs… or about adoption...or about IVF...or about being a foster parent...etc. Tell people who haven’t dealt with infertility how you would like to be treated.
Videos should be short and sweet – one to three minutes. We are taking a grassroots approach to this, so don’t worry about fancy production. Uploading your video will also be easy. Videos will need to be submitted by September 1.
If you would like to participate, here’s what we need from you now: send an e-mail to Andy at email@example.com with your name, age, state, and what topic you plan to talk about. You do not have to send a video right now.
Andy will follow up with you in the upcoming weeks with a few more details as well as those upload instructions. Thank you for considering lending your voice (and face!) to this exciting public awareness campaign!
I already told DH I'll be needing help with filming my video about the things I wish I had known about insurance coverage of infertility. Like when I participated in the Bust an Infertility Myth Blog Challenge and when I emailed and called my Senators about the Family Act of 2011, I feel good about being able to do something other than just my random posts to advocate for infertility awareness and consideration.
Wednesday, July 20, 2011
I was so NOT ready for the alarm to go off at 5:45 AM, but I had scheduled a 7:15 appointment when later ones were available in order to interfere with DH's workday as little as possible. After dealing with all of the new patient stuff, we met with Dr. McKeeby. He looked at our paperwork, and we pointed out the most pertinent parts.
We discussed the possibility of PCOS that had been raised by my OB, and he said that PCOS does not appear to be the problem. I could still have polycystic ovaries, since PCOS is a symptom of insulin resistance rather than the other way around, but the 18 months of basal body temp charts with LH surges marked indicate that I am ovulating the way I should be. Plus, I don't have any of the other symptoms of PCOS. I'm going to continue to take the Metformin that my PCP had given me, but he prescribed it to help prevent/delay the metabolic syndrome that I don't have yet but am at risk for, rather than for infertility.
OK, so if it's not PCOS, what is it? Dr. McKeeby said that DH's previous results look close enough to normal to not be a concern, although he is of course going to have to repeat the testing. We both have to have bloodwork (a repeat for me) to make sure we don't have HIV, Hepatitis B or C or syphilis (insert Grey's Anatomy Season 1 joke here). The more key things, however, will be the tests I'll have done in the next couple of weeks. Day 3 bloodwork (testing FSH, TSH, estrogen, and prolactin levels) and another pelvic ultrasound, and several days later a hysterosalpinogram (HSG). For those who don't know infertility terminology, that involves putting dye into my anatomy to look for problems, especially with the fallopian tubes. From what I hear, I will be very definitely taking a couple of Aleve ahead of time, because it hurts. Not like a sprain or break hurts or anything, but enough for me to want the meds. DH wants to be there with me for it, which I thought was really sweet. Fortunately for us both, we can get it done at a non-Shady Grove facility in Annapolis rather than going all the way to the main SG office in Rockville. One thing that I love so far about SG is that they will call me later that day (or Monday if it's on a weekend) with results of bloodwork and other tests...almost no waiting!
Based on all this, we'll be looking at either Intra-Uterine Insemination (IUI) or IVF. IUI is less invasive in a lot of ways and involves few if any needles going into me. It does have an increased risk of twins, but not much risk of higher-order multiples, and we wouldn't mind twins. IVF has for people like us about triple the success rate of IUI and more control over how many babies are likely, but it involves a lot more needles and hormones and anesthesia.
Our nurse, Crystal, then came in. Yes, we get one designated nurse to work with through all of this rather than just dealing with whoever's available at any given time. So far, I am loving the service! She went over the testing with us, as well as how to get it done. Once I hit Day 1, I'll call her and she'll schedule me for my testing. She also told me to go ahead and start taking prenatal vitamins again (if you remember, I stopped taking them months back when I lost hope completely). That felt kinda weird tonight, digging the bottle back out from the bottom of the bin where we keep medications and first aid stuff.
Crystal then took us to Darlene, who handles the finances. She had talked to my insurance company when we were with Dr. McKeeby and Crystal, and she found out that my insurance apparently doesn't cover IUI. I had thought that all of the mainline IF treatments were covered, but looking back at my emails when I got to work, I saw that the insurance broker had said the policy didn't mention IUI one way or the other and that she would need to look up the procedure codes. I called Darlene and got the codes from her, and the insurance broker will get back to me by the end of the week on whether they're covered.
DH and I talked about the possibility of IUI not being covered on the way to the cars. My main feeling was that I would hate to have to go with a more intense and invasive procedure just because of money and insurance coverage. DH pointed out the higher success rate of IVF and noted that it might not be that bad. So we'll see. I'm sure there will be many conversations about this.
Next stop on the Magical Bodily Tour, the vampires of the opera (or at least of the doctor's office).
Monday, July 18, 2011
Friday night I got to have dinner with DH and a friend we hadn't seen in several years. Later that night, DH and I got used as a jungle gym by our friends' 4- and 7-year-old. We've started seeing these friends (who live 10 hours away from us) often enough that the kids remember us from visit to visit, and they are so sweet and snuggly!
At the wedding reception, we were seated with a couple from APO that we didn't know before. The wife and I got to talking, and we found out that we have IF in common; we sat there for a while trading info. This morning, we sat with them at the post-wedding brunch, which turned out to be a very good thing for me. The seat next to me was empty for DH, who was a little late, and while I was in the buffet line, a woman sat there with her baby to talk to the non-APO people at the table. When I came back to the table, I waited for a break in the conversation and mentioned to the woman that I had been saving the seat for DH. She said that was fine, that she'd move when DH got there (although she was really slow to move when DH did arrive). The woman next to her then said, "Wouldn't you rather take the baby home than the husband?" I just kinda looked at her; I had no idea what to say or how to respond. Ideally I would have had some sort of witty comeback, one that didn't even touch on infertility (since I assume the person didn't mean any harm), but I just couldn't come up with anything. There was an awkward silence and then they resumed their conversation. Even before my new friend leaned over to remind me that some people with babies can be really rude, it just really helped me to know that the person sitting next to me got it and understood my reactions, both the reaction that showed and the reaction that didn't show. I told DH about it when he sat down (in a whisper, since the people were still there), and he was sweet and supportive, but it still helped to have someone understand me in addition to having someone support and care for me.
Just over 2 days till my appointment!
Monday, July 11, 2011
Sunday, July 10, 2011
I was amazed from the beginning that I only had a one-month wait for my appointment at Shady Grove. It still could have been a hard wait, but I've been lucky to have a really full month in the meantime. First Membership Academy for APO, then running a quizbowl tournament for JROTC teams, then the 4th of July weekend. Now I'm spending the last full week before the appointment at the beach with my family. On the one hand, there are toddlers everywhere, with something like 7 kids below school age, and one cousin that's here is due in August, but it makes it easier to deal with it because I have the appointment coming up. On the other hand, it could be really hard to wait with the anticipation of the last week, but it makes it easier to deal with it because I have fun things to do with my family this week.
Thursday, July 07, 2011
Also, when I read the finalists for Best Blog, I came across a great post from Whitney & Erick. What Whitney wrote about the statements of "just relax" really resonated with me. The rest of this post is copied from her (and thus contains some medical details that I hope don't apply to me).
First and foremost, infertility is a disease that affects 1 in 8 couples of reproductive age. The definition of a disease is “disordered or incorrectly functioning organ, part, structure, or system of the body.” Infertility is due to some malfunction in the body, whether it be hormonal or structural. Ergo, a disease. Even for people with unexplained infertility, clearly something is wrong, but the reproductive system is complicated and sometimes it’s hard to diagnose. In my case, I do have several diagnosed problems including a uterine abnormality, luteal phase defect, Factor V Leiden, and autoimmune issues.
Without medical help, there is nothing I can do to have a baby. And, possibly not even with medical help. Nothing short of a miracle from God, that is. And, while I pray for that all the time, I can’t count on it. If you apply this “relax” thinking to the rest of your life, imagine this. Sitting around and waiting for a great job to land in your lap. Waiting to magically learn something new without studying. That doesn’t work – just like everything else, you have to work for it. And, just because some people didn’t have to work hard to have a baby, doesn’t mean I don’t have to. A little Marvin Gaye and a bottle of wine might work for some, but for me the recipe involves follitropin alfa injections, human chorionic gonadotrophins, anti-coagulants, steroids and lots of poking and prodding.
When people tell me to “just relax,” it’s insulting. Even though most people have good intentions when they say it, it hurts. It somehow insinuates that I have done something wrong. It makes it my fault. I know it’s not true, but it still hurts. It’s an accusation that somehow because of my inability to “relax,” I cannot have a baby. If only that were true, and that easy, I would have a 4-year-old by now.
Besides, I don’t feel “stressed” about my situation all the time. Usually just at key decision points. Everyone does and would. This has become part of my life, and I have learned to live with it. Usually, it’s a quiet sadness, not a throbbing stress. I talk about it all the time, but that’s because it’s cathartic to do so. To imply that I should be able to make life-altering decisions without a little stress is absurd. I’m pretty sure that lots of regular women who get pregnant all the time are stressing about their job, their kids, their relationships or something. Stress is not the problem.
Those of us struggling to conceive have been through hell. We’ve put our lives on hold. We have put our bodies through the ringer. Our relationships have suffered. We’ve had to deal with loss. We’re emotionally spent. We deal with failure on an almost permanent basis. We’re tired, frustrated and beaten down. Relax is not something we want to hear and it’s not the answer to our problems.
What people say [and my response]
- Maybe if you just stop trying/relax/forget about it/etc. “My cousin’s friend’s sister-in-law tried for a long time and then they gave up and what-do-you-know, they got pregnant. You never know…” [ Well, I pretty much gave up a while ago, but I'm still not a mommy. Also, all of those months in between the IVFs, I haven't "been trying." And, not all infertility is equal. Unless you know the nitty gritty details of your friend thrice-removed and my reproductive history, how can you compare? Your friend trying for 6 months and going on Clomid and giving up and then getting pregnant does not even remotely resemble anything to do with me or my situation. For the record, in this scenario, that would not even constitute an infertility diagnosis at all. Usually the threshold is one year of trying.]
- You need to stop thinking of all of this. [There have been times when we have taken a break from this battle. That didn't work. And, like or not, infertility has become part of me. It doesn't define me, but it's always there lurking in the background.]
- Take a vacation. [I've taken many during the five plus years we've been trying to conceive. Really gotten away from it all. Gone half way around the world. Sailed in the Mediterranean. Slept in the rainforest. Hiked a volcano. And, I didn't think about infertility at all. Nope, that didn't work. But, man, if it did, that would be awesome. Pregnant and lots of travel. Perfect!]
- You should meditate. [That might be a good thing to do, but it's not going to get me a baby.]
- Mind over matter. [Well, I have visualized a happy outcome, but it just hasn't worked. Besides if I could just conjure up anything I wanted, I would not only have a baby, I would also live in a custom house on the beach, travel the world, have great muscle tone and speak five languages.]
- You need to think positive. [It used to be easier to be more positive. Along with that positivity, I was also naive and blissfully ignorant. It's not that I'm not positive, but I'm a realist. I always hope for the best, but am prepared for the worst.]
- You need to stop being so stressed. [If you are experiencing stress and then feel pressure to not be stressed, the stress just multiplies. And, for me, there have been times that I have been stressed and times I have not. Not being stressed did not give us a healthy pregnancy. Also, when undergoing IVF, since all of the hormones are administered, stress does not play a part. See this study.]